- What were the key features of this person’s illness? E.g., how did it affect them physically, psychologically, socially, and spiritually?
- What treatments and therapies had they tried? What was most helpful/least helpful?
- What helps them cope? What sources of support do they have?
- What had their interactions/relationships with healthcare providers been like and what can you learn from that?
Patient diagnosed
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fibromyalgia first in 2017 (or 2015??) went to other GP who diagnosed her and she had very high signs
- put on nortryipaline -but anitrypaline is better keeps her up at night.
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type 2 diabetic with type 1 symptoms
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Pelvic congestion syndrome diagnosis at the same time
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Long covid - caught in aug 2022 - left her with ejection systolic heart murmur
- metforrmin
- nor- and ama- tryptaline
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Most health clinics don’t want to see her on the hypothesised account of that they find her too hard.
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Has a long list of prescrptions bc she forgets them all.
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Training dog for service - looking to train for diabetes symptoms
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children are neurodivergent
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lots of prescriptions
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has c(t?)ptsd - brain fog
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chronic pain too
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has scoliosis
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low bp hot shower makes her dizzy - has someone to supervise showers - shower chair etc (something with sensitive claim history) - (MASK?)
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has husband wont even wash her
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she had sensitive claim
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side effect of medications is dry mouth
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a lot of her symptoms are that of type 1 diabetes
- masks her diabetes
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got concussed from a fall nand this wasnt picked up at hospital
- her hospital has suffered from short staffing and lack of funding
- Lot of patients have butchered care
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passed out behind wheel of car before so tried to not drive as much as possible
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diabetes is under better control - wears CGM to keep blood sugars level
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youngest child is autistic with bronchioectasis
- and viral pneumonia
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daughter is autistic and has adhd
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xaria asked what she did for work
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not working sensitive claim acc funding loss of potential earnings good that it was filed before 18th birthday
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regular engagement with acc councillor and they are happy
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husband is full time truck driver.
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pregnant with daughter trained as executive assistant
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worked as a chef and nanny
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i asked about alternative medicines
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early menopause from failed
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contraindicated for hrt
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Pelvic congestion syndrome
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cannabis based things for pain and fibromyalia
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cannabis hemp oil almond oil lavendar oil for muscles
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chocolates with cannabis extract
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use only at night for sleep
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makes dizzy
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satya askes about support networks
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doesnt talk to sister as sister tried to mother her
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mother was elma
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sister went to queen elizabeth hospital for fibromyalgia
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went to pain clinic and het get off opiates and onto gabapentin
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used to be on opiates and antihistamines
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struggling with losing weight do to cannatreats
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the women in her family struggles with weight gain on menopause (she said she used to be a beanpole)
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gaure askes what was going on in her life when she was diagnosed
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trying to grapple with autism diagnosis of child
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planning wedding
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olde4st moved home?
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coming back from self
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2013 broke free from years of domestic abuse
- grew up in toxic environment where normal was domestic abuse
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nearly lost youngest 2 children and attemped to leave and then met husband (together or married in 2014)
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body collapsed in around 2017
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c1-5 disk in back blew
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snowballed
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gaure asked about mental health
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regualr engagment with councillor
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takes time for self so she can just be her
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time to not feel sick or overwhelmed
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she said she feel lucky due to the 2 diagnosises of children because she can get grant money to care for them.
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shes happy because she feels like she had good time for
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chris asks for advice for the class as future doctors
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she says not much time to be with patients. with 15 minutes each
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listen to the patient
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get into patients shoes and understand where they are coming from
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talks about id there was a dog with condition it would be put down
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originally got put on lots of pills
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she really is wanting pain relief
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i think lots of pain is localised in her spine
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she says compassion is what is needed.
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Xaria asks what sustains her
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and replies god is what strengthens her
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phillipians 4:12
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she has things that make it easier but her faith is what sustains her
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highlights the absurdity of the home modification fund
Thoughts
i feel like she did talk about her drugs and medical experiences at length and often pivoted to this when asked about a more holistic treatment.
I wonder if her faith made her less likely to pursue eastern medicine
managing QOL of patient is difficult with restricted treatment modality
she said that if she was a dog it would be put down